Emma Bear Update 2

WHAT A DIFFERENCE A WEEK MAKES! PRAISE GOD!

To all of you who have been diligent in prayer, please take a moment and thank HIM from the bottom of your heart for a miraculous week!  After I updated you all last Saturday Emma smiled for us for the first time in weeks!  We were so excited!  First we got a smile on her changing table and we had another one later that night.  On Sunday it was a smile-fest!  I am sure this is because it had been over 24 hours since her last spasm freeing her mind up a bit for some happiness!  Doug and I saw smiles all day long and posted what we could get a picture of.  Then Sunday night came with a spasm.  A 12 minute long seizure which broke our hearts.

Monday started Day 8 AND WE HAVEN'T HAD A SEIZURE SINCE! What a week! Emma is still waking up in the night (probably because she is ravenous for food) but I can usually get her back to bed within an hour.  We still have a fussy baby but nothing like the week before (or maybe we are getting more used to it:). Nevertheless, we have a baby that smiles in the morning when you first see her face and continues to smile throughout the day.  She follows us again as we walk about, she gets excited, she plays, rolls over and gets frustrated that she isn't mobile yet.  She is getting her personality back! She isn't playing with her toys as much as she used to just yet but she is working on it.

So where do we go from here?  Well, we take her to the hospital next week for a follow-up EEG to see how her brain activity is doing.  We are aiming for a normal EEG with no hypsarrhythmia (chaotic brain waves).  Please keep her in your prayers.  We also have to be careful as we wean her off of the steroid to make sure the spasms don't come back.  We are by no means in the clear but we are overjoyed at God's Love for us! I am certain we are headed in the right direction.  I joined yahoo groups IS board and there are so many children who battle these spasms relentlessly.  How blessed are we that the ACTH treatment is working.

Thank you again to all of you for all your support.  Whether you brought dinner this week, sent emails and posts or prayed diligently for our family, we love you and thank you from the bottom of our hearts.  We know that we have powerful prayer warriors on our side standing with us as we walk this difficult journey.  

I thank God that I know Him better and praise Him for choosing Doug and I to watch over this angel of His.  She is amazing!

Much Love,

The Wilson's

Doug, Dawn, Brittany, Emma Grace and baby Henry!:)